Ted Arnott, MPP
Wellington – Halton Hills
FOR IMMEDIATE RELEASE
July 25, 2011
Life-saving drug to be covered by the Provinces
MPP Arnott thanks Canada’s Premiers
(Wellington-Halton Hills) – Wellington-Halton Hills MPP Ted Arnott has expressed appreciation
to the provincial Premiers of Canada for agreeing to provide funding for Soliris, a life-saving
drug for paroxysmal nocturnal hemoglobinuria (PNH) patients.
“This is great news for Lucas Maciesza and his family, who fought long and hard to get this
medication approved and save Lucas’ life,” Mr. Arnott said.
Last November, Mr. Arnott was contacted by Rick Maciesza, Lucas’ father.
“When I heard that Lucas Maciesza might die without Soliris, we went to work. I repeatedly
raised the issue with the Minister of Health, including Questions in the Legislature,” Mr. Arnott
recalled. “I am so pleased that this story has had a happy ending.”
The Toronto Star reported on July 22 , that the Premiers of Canada have agreed to band
together to bulk-buy Soliris. It is hoped that this kind of cooperation can reduce the cost of
medication for rare diseases, including PNH.
“The Premiers deserve credit, but most of all, the credit should go to Lucas, his father Rick and
the others, like Tanya Talaga of the Toronto Star, who advocated so passionately, and in the
end successfully,” Mr. Arnott concluded.
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